Verkkoa lynchburg woman battling a rare disease is sharing her story and hopes to inspire others in the process.

Only about one out of every 100,000.

Miriam rees is a fighter.

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Verkkojohnathan sosbe is a senior at athens academy in crawfordsville, and on the outside he seems like your typical teen.

Brynlee henderson is one of.

But he’s living with the life.

According to minna pöyhönen, professor of medical genetics, the study of rare diseases.

Local obituaries on TV5 and ObitMichigan - WNEM TV 5

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